RESEARCH ACCOMPLISHMENTS
A selection of the Center's most significant findings

 

Center for the Study of Issues in Public Mental Health

Period: July 1994- August 2005

 

P.I. and Director: Carole Siegel, Ph.D.

 

Current Research Co- Directors

Mary Jane Alexander, Ph.D.

Kim Hopper, Ph.D.

Current Core Directors

Mary Jane Alexander, Ph.D.

Kim Hopper, Ph.D.

Judith Samuels, Ph.D.

Colleen Gillespie, Ph.D.

Carole Siegel, Ph.D.

 

Administrative Director

Dixianne Penney, Ph.D

 

A Collaborative Center

Nathan Kline Institute for Psychiatric Research

New York State Office of Mental Health

New York University, Robert F. Wagner Graduate School of Public Service

Nelson A. Rockefeller College of Public Affairs and Policy, School of Social Welfare

University at Albany, State University of New York

 

November, 2005

 

Table of Contents

I. Cultural Competency

1. Measurement tools

II.Co-occurring Disorders

1. Participation in an Interagency Workgroup

2. Screening for Co-occuring Disorders

3. Treatment for Women with Co-occuring Disorders

III. Community Living

A. Housing

1. Residential Instability among Homeless Persons with

Mental Illness

2. New York/New York Housing

3. Housing Alternatives for Persons with Severe Mental

Disorders

4. Critical Time Intervention applied to Transitional

Housing

B. Welfare

5. Pathways through Temporary Assistance for Needy Families

(TANF)

C. Criminal Justice System

6. Arraignment of Offenders with Severe Mental

Disorders

7. The Nathaniel Project

IV. Recovery and Enhancing Consumer Capabilities

A. Recovery

1. Conference on Work of Recovery: Implications for

Psychiatry and Research

2. An Instrument to Measure Recovery

B. Choice

3. Evaluation of the NYC Involuntary Commitment

Program

4. Psychiatric Advance Directives

C. Motherhood

5. Motherhood and Mental Illness Conference

6. Invisible Mothers: An Exploratory Study of the

Contact, Caretaking, and Custody

Arrangements Negotiated by Women with

Severe Psychiatric Disorders in the New York

City Shelter System

D. Employment

7. Creating a Stake in Working

8. Employment Profiles of Persons with Severe

Mental Illness in the Workforce

V. Policy Input: Quick Response Projects

1. Potential for Cost Shifting under Parity Legislation

2. How to Estimate Capacity Requirements for Mental

Health Services Post-Disaster

3. Estimation of Additional Capacity of the Mental Health

Sector to meet Extended Service Demands

4. Working Clergy and Mental Health

VI. Gateways to Care

1. Emergency Room Decision Making

2. Risk Assessment

VII. Methodology

1. Mental Health Indices

2. Statistical Methods for Cost-Effectiveness Analyses

3. Sequential Decision Making in Cost-Effective Analyses

4. Statistical Cost-Effectiveness Analysis of Treatments

Based on Net Health Benefits

5. The Family-wise Error Rate of a Simultaneous

Confidence Band for the Net Health Benefit Function

6. Counting Methods for Multiple list problems


To view additional Center projects click above.



 

I. Cultural Competency

I. 1 Measurement tools

 

Background Reports of the disparate experiences of minority group members in mental health settings abound in the literature. A number of studies have noted higher rates of inpatient hospitalizations for minorities than for the dominant population, misdiagnosis, language barriers, inappropriate planning, early terminations from treatment, and restrictions imposed by managed care. Cultural competency has been proposed as a remedy. Cultural competency has been defined as "the set of behaviors, attitudes and skills, policies and procedures that come together in a system, agency or individuals to enable mental health caregivers to work effectively and efficiently in cross/ multicultural situations."

 

Accomplishment Center researchers working directly with multi-cultural groups developed a framework of cultural competency, and based on it, performance measures and their benchmarks and an organizational level assessment scale.

 

Highlights Working with multi-cultural expert panels reflecting the major ethnic groups in the United States and a broad range of mental health stakeholders, a comprehensive set of indicators of cultural competency and performance measures of their attainment within mental health programs were selected and reduced to a workable list. Data sources for these indicators and the feasibility of collecting information were specified. Selections made fell within the domains of need assessment, information exchange, services, human resources, policies and plans, and outcomes. The indicators and measures were applied across administrative, service delivery, and individual caregiver levels. Subsequently these measures were benchmarked and used to develop a Cultural Competency Assessment Scale. They synthesized a large number of performance measures and their benchmarks into 11 critical areas of cultural competency. These areas are considered high priority areas and activities that should begin an early on in a cultural competency process. It is fully compatible with prior work of other groups and in particular with the Federal Cultural and Linguistic Assessment Standards. It measures:

o Organizational commitment to cultural competency, expressed in

dedicated budgets, assigned person, comprehensiveness of plan.


o
Assessment of service needs.


o
Input of cultural groups into organizational activities incorporating

community, consumer and family representatives.


o
Integration of cultural competency in organizational activities including

service review, linkages to quality assessment programs, reporting to the

CEO.


o
Attention to language needs of target populations in terms of interpreters,

bilingual staff, forms and educational materials.


The scale has been pilot tested. The project received additional funding from SAMHSA

 

Impact

 

An NIMH grant has been received to establish the reliability and validity of the
scale. Reliability will ensure that different raters apply the scale consistently and
accurately. Validity will indicate whether there is correlation between cultural
competency and a reduction in service disparities.
NIH monies are supporting an NYU subcontract to adapt the scale to Asian
American populations.
Dr. Robert Drake at Dartmouth will include the scale in the Evidence-Based
Practice (EBP) Toolkits to ensure that cultural competency is taken into account
when disseminating and adapting EBPs.
Several grant submissions to SAMHSA on EBPs have included the use of the
scale in their assessment plans.
The scale has been disseminated to over 200 persons.
Use of the scale is expected to move and promote organizations and their
personnel toward culturally competent behaviors in the delivery of mental health
services.

 

Researchers: Carole Siegel, Ph.D., Gary Haugland, MA, Ethel Davis Chambers, RN, MS., Lenora-Reid Rose, MBA

 

Publications:

Siegel C, Chambers ED, Haugland G, Bank R, Aponte C. (1998). A Framework for the Development of Performance Measures of Cultural Competency in Managed Care and Other Mental Health Organizations. NYS Office of Mental Health.

 

Siegel C, Chambers E D, Haugland G, Bank R, Aponte C, McCombs H (2000).

Performance measures of cultural competency in mental health organizations.

Administration and Policy in Mental Health 28(2): 91-106.

 

Siegel C, Haugland G, Chambers ED (2002). Cultural Competency Methodological and Data Strategies to Assess the Quality of Services in Mental Health Systems of Care. Orangeburg NY: CSIPMH; NKI; NYSOMH (89 pp.)

 

Siegel C, Haugland G, Chambers ED (2003). Performance measures and their

benchmarks for assessing organizational cultural competency in behavioral health care service delivery. Administration and Policy in Mental Health, 31(2): 141-170.

 

Siegel C, Haugland G, Schore R (2005). The interface of cultural competency and

evidence-based practices. In: Drake RE, Merrens MR, Lynde D, eds. Evidence-Based Mental Health Practice. New York: W.W. Norton & Co, 273-299.

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II. Co-occurring Disorders

II.1 Participation in an Interagency Workgroup on Co-occuring Disorders

Background
High rates and adverse consequences of co-occurring mental illness and substance use
disorders make detection critical, but surveys of local providers show that neither set of conditions are
adequately identified or addressed outside of their specialty sector settings. Though research has
established that integrated services improve outcomes for co-occurring disorders, there are few established
methods for localities to develop and sustain integrated networks across providers and systems. An
Interagency Workgroup on Co-occurring Disorders (IWCD) works across NYS OMH and NYS OASAS to
develop a policy and service infrastructure that will support a seamless system of care - No Wrong Door -
for people with co-occurring mental health and substance abuse problems.

Accomplishment Dr. Alexander is a member of the IWCD, and two of its members
are Center faculty. Work with the IWCD resulted in Center development of screens for
detecting mental illness and for substance abuse. Consensus panels were organized
by Center researchers better to understand the activities and successes of Dual
Recovery Coordinators hired to build and sustain locally integrated networks.

Highlights

.

Impact
OMH, OASAS and the localities used results to better support DRCs in
introducing innovations, such as the screens, to integrate services.

Researchers
Mary Jane Alexander, Ph.D., Gary Haugland, M.S.

Publications
Alexander, M. J. & Haugland, G. (2004). The New York State Dual
Recovery Coordinator Initiative: A process evaluation (CSAT State Systems Technical
Assistance Project No. 270-99-7070). Rockville, MD: SAMHSA.
21

II.2 Screening for co-occurring disorders

Background A major barrier in providing effective services for persons with co-occurring mental illness and
substance abuse disorders has been the lack of systematic tools and procedures to identify these disorders. Persons
with dual disorders follow multiple pathways to care: some through a mental health agency, others a substance
abuse program. Many are not engaged in either system. Historically, the two systems have been unsuccessful at
coordinating the services offered, resulting in fragmented care. In New York State, Center researchers collaborated
with an inter-agency work group of NYS Office of Substance Abuse and Alcohol Services [OASAS] and the Office
of Mental Health [OMH]), the IWCD, to conceptualize the issues surrounding treatment of persons with Co-occuring
disorders, and to design local screening, training and integration initiatives.

Accomplishment: S
creening instruments were selected, computerized and validated to detect
mental health and substance abuse disorders. These instruments proved to be accurate in
naturalistic settings and can provide- useful tools in service systems developing a “No Wrong
Door” policy for persons with co-occurring mental health and substance abuse problems.


Highlights
Items from the DSM-IV-TR, the SCID and the MINI International Neuropsychiatric
Interview (MMS) and the Dartmouth Assessment of Lifestyle Inventory (DALI-14) were
validated for use in identifying mental health disorders and substance abuse problems
respectively with culturally heterogeneous, high-risk clients in primary care, specialty sector, and
non-traditional service settings. Screens were validated using the SCID (Structured Clinical
Interview for Diagnosis) as well as clinician ratings and record reviews. The instruments are
used to establish the presence of current and lifetime Mood, Anxiety, Psychosis and
Psychoactive Substance Use Disorders.
The study was conducted in 37 rural, urban and suburban settings, including primary care
clinics, outpatient and residential chemical dependency settings, mental health crisis
clinics, psychiatric emergency rooms, local jails and shelters.
The MMS and DALI-14 were delivered to and validated with consumers in settings that
span the systems delineated in the SAMHSA 4 Quadrant Model of Loci of Care for
persons with co-occurring disorders.
The MMS at cut points of 6-9 (range : 0-22), had sensitivities ranging from .70 - .82,
specificities ranging from .61 - .78, and an overall accuracy of 70 - 74% for detecting
patients with high risk for current mental illness.
The DALI-14 at cut points of 3-4 (range:0-18) had sensitivities ranging from .77 - .86,
specificities ranging from .57 - .75, and overall accuracy ranging from 66 - 81% for
detecting patients with high risk for lifetime alcohol and/or drug abuse.
The screens performed equally well for men and women, and for African Americans and
Caucasians, and are comparable to the performance of other screens in less compromised
populations.

Impact
The screens and a manual for both screens and are available from the authors.
A computer-assisted interview with visual and audio prompts developed for the study
may provide an approach for screening interviews. The program is available on the
Center web site.
Following successful pilot testing, OASAS recommends and actively supports the MMS
statewide in chemical dependency agencies. Implementation materials are available on
the OASAS web site ( www.oasas.state.ny.us/hps/research)
New York City DOHMH is actively conducting a 2 year Quality Improvement Project
using the MMS and its decision support materials in 24 chemical dependency agencies.
Use of these screens will improve case finding by identifying high-risk individuals and
improving access to services through a more coordinated treatment planning process.

Researchers:
PI: Mary Jane Alexander, Ph.D. Co-PIs: Gary Haugland, MA, Isaac Koilpillai,
M.D., Frank McCorry, Ph.D.

Publications:
Alexander MJ (1998). Women with co-occurring addictive and mental disorders: An emerging
profile of vulnerability. In:Drake RE Mercer-McFadden C, McHugo GF, Mueser KT,
Rosenberg SD, Clark RE, Brunette MF, eds. Readings in dual diagnosis. Columbia, MD:.
International Association of Psychosocial Rehabilitation Services.

Alexander MJ et al. (2005). Screening for Co-Occurring Mental Illness and Substance Abuse
Disorders in Diverse Settings: A Validation Study, in preparation.

II.3 Treatment for Women with Co-occurring Disorders

Background Little information existed on whether women with a dual diagnosis of mental illness and
substance abuse disorders require treatment approaches that differ from treatment for men, or from women
who only have a diagnosis of mental illness. To respond, this study aimed to develop prevalence rates,
including setting and gender specific rates, of coexisting severe mental illness and substance abuse
problems among individuals receiving mental health services; to compare characteristics of individuals
with and without substance abuse co-morbidity; and to examine gender-specific risk factors and contextual
variables that affect outcomes and/or use of services.

Accomplishment
Researchers found significant differences in risk factors and service
use in women diagnosed with co-occurring mental illness and substance abuse
disorders when compared with men, or with other women with mental illness who did
not abuse alcohol or drugs.

Highlights
Forty-nine New York State urban and rural treatment sites (excluding New
York City) were studied stratified by agency ownership (public or private), types of
clinical service (inpatient, ambulatory clinic, case management, social/ vocational
rehabilitation), and agency complexity (multiple service provider; single service). 671
records were reviewed for gender, age, ethnicity, psychiatric diagnoses of record and
substance use diagnoses as well as the presence of an alcohol or substance use problem or
diagnosis. 546 persons were interviewed covering: Alcohol and substance use problems
and history, housing, family relations, social relations, leisure, safety, finances, health,
job, school, mental health service utilization; optimism, coping and advocacy dimensions
of empowerment.
Half of all women receiving mental health services have co-occurring mental
illness and substance abuse disorders.
Women with dual diagnoses were 1.6x more likely than men to report childhood
experiences of sexual trauma and 2x more likely to report emotional abuse and
adult victimization.
They were more likely than men, and more likely than women without dual
diagnoses, to have been homeless or doubled up in living arrangements during the
past year.
They were more likely than non-dually diagnosed women to be married and living
with their spouse and children, but had higher rates of dissatisfaction in their
family relationships dealing with family crises through verbal and physical
aggression.
They made greater use of hospital emergency rooms for psychiatric crises than
women not dually diagnosed.
Persons with dual disorders (especially women) were found at risk to overdose
and for HIV infection by virtue of injection behavior.
Dually diagnosed women were more likely to have been arrested during the prior
year and imprisoned at some time in their lives with only a small percent
receiving needed services while incarcerated. This finding also held true for men
with dual diagnoses.
Women were more likely than men to have been victims of either violent or nonviolent
crimes.
Thirty per cent of those with lifetime problems have never received treatment for
their substance use problems, despite the fact that alcohol or drugs are implicated
in the use of roughly half of reported inpatient and outpatient psychiatric
episodes.
There were differences in the types of services used recently: Dual diagnosed
women were 4x as likely as women not dually diagnosed to have used emergency
room services. Both dually diagnosed men and women were 1.5x more likely to
use psychiatric outpatient services, and 1.7x as likely as to use psychiatric
inpatient services. Many relied on self help and outpatient counseling services for
help with their alcohol and drug problems.
In related projects the Center field tested the utility of screening instruments for
mental illness and substance abuse.

Impact
Treatment programs for dually diagnosed women need to be tailored to their
special needs, and include services in forensic settings.
Women should be offered special residential options to accommodate their role as
mothers.

Researchers:
Mary Jane Alexander, Ph.D., Gary Haugland, MA

Publications:
Alexander MJ (1996). Women with co occurring addictive and mental disorders: An emerging
profile of vulnerability. American Journal of Orthopsychiatry, 66:61-70.

Alexander MJ. (1998). Women with co-occurring addictive and mental disorders: An
emerging profile of vulnerability, In: Drake RE. Mercer-McFadden C, McHugo GF,
Mueser KT, Rosenberg SD, Clark RE, Brunette MF (eds.), Readings in dual diagnosis.
Columbia MD: Inter Assn of Psychosocial Rehabilitation Services.

Alexander, MJ, Haugland G (1998). Gender specific rates of dual diagnoses among
individuals using mental health services. Report to the National Institute of Mental
Health.

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25

III. Community Living

A. Housing

III. 1 Residential Instability among Homeless Persons with Mental Illness

Background
Homelessness appears to be a persistent problem for many individuals with severe mental
illness. Understanding their residential pathways could provide some insight into its causes.

Accomplishment
Researchers determined that substantial numbers of homeless
persons with mental illness or substance abuse disorders cycle through an
“institutional circuit” that takes them through stays in shelters, hospitals, prisons,
detoxification and rehabilitation facilities, as well as time on the street.

Highlights
In a quasi-ethnographic study conducted in Westchester County, 36
individuals with severe psychiatric disability were interviewed in depth, and followed for
six months. There was sufficient data to chart the course of homelessness for 25 of them.
Researchers found that intensive, targeted re-housing efforts are needed to break the
institutional circuit.
Only a small percentage ever attained successful housing placements. Far more
common were essentially uninterrupted shelter stays or a pattern of cycling
through a variety of short-term institutional placements.
For 56% of the subjects, shelters had become an enduring pattern of life lived on
the “institutional circuit.”
Shelters functioned in four ways: as a temporary source of transitional housing; as
a surrogate for kin support, as part of an extended institutional circuit; and as a
haphazard resource to turn to in essentially nomadic lives.
For a group of high-use service recipients, suitable supported housing was not
available. Their residential instability was re-enforced by the absence of
institutional services follow-through.

Impact
Gaps in the Westchester County homeless service system were identified with
specifications for the reasons for these gaps.

Researchers:
Kim Hopper, Ph.D., Gary Haugland, MA, Terry Hay, BA, John Jost MS

Publications:
Haugland G, Siegel C, Hopper K, et al. (1997). Mental illness among single homeless
adults in a suburban county. Psychiatric Services 48: 504-509.

Hopper K, Jost J, Hay T, Welber S, Haugland G (1997). Homelessness, severe mental
illness and the institutional circuit. Psychiatric Services 48: 659-665
.
Shinn M, Weitzman B, Hopper K. (1998). Homelessness, in Encyclopedia of Mental
Health. San Diego: Academic Press.

III. 2 New York/New York Housing

Background
The New York/New York Agreement to provide housing for persons with mental
disorders resulted in the placement of over 3,500 previously homeless or at-risk individuals into newly
developed supportive housing. This study provides an analysis of descriptive and housing tenure data that
had been collected by the New York City Human Resources Administration on 3,114 persons housed as
part of the New York/ New York housing program from 1990 to 1995.

Accomplishment
Center researchers found supportive housing is a viable program to
reduce residential instability for most persons with severe mental disorders found in
the community.

Highlights
Researchers studied the length of tenure of persons with mental disorders
placed in low-, moderate-, and highly structured models of supportive housing. Data was
correlated with demographics, psychiatric diagnosis, chemical abuse co-morbidities,
source of referral, and the characteristics of specific housing models. Survival analysis
was used to generate the distribution of the length of time in housing for the group as a
whole, as well as the probability of residents leaving supportive housing over time.
Persons with mental disorders placed in supportive housing remained in stable
residence for extended periods of time: 75% for at least one year, 64% were still
housed after two years, and at least 50% remained throughout the five year study
period. The older the individual, the longer the stay in residential housing. Those
referred from shelter programs to housing had better outcomes than those placed
from hospitals.
Tenure in housing also varied by the degree of structure to the residential setting.
o Persons in highly structured settings remained in residence for the shortest
periods of time. Those placed in this setting included individuals with
histories of substance abuse and/or a diagnosis of schizophrenia.
o Individuals in moderately structured settings remained in housing longer.
They were more than likely to be women, diagnosed with schizophrenia,
but less likely to have a substance abuse history.
o Residents in the least structured settings remained in housing the longest.
They had been long-term users of the shelter system, typically have a
bipolar or other mood disorder diagnosis, and only a moderate level of
substance abuse history.

Impact
The study points to the need for further development of varied housing models.
Data obtained from this study can yield criteria for matching individuals needing
housing with the type of housing that would best meet their needs.

Researchers:
Carole Siegel, Ph.D, Judith Samuels, Ph.D, Frank Lipton, M.D.,
Anthony Hannigan, MSW, Sherryl Baker, Ph.D.

Publication:
Lipton F, Siegel C, Hannigan A, Samuels J, Baker S. (2000). Tenure in
supportive housing for homeless persons with severe mental illness. Psychiatric Services,
51(4):479-486.

27

III. 3 Housing Alternatives for Persons with Severe Mental Disorders

Background The level of supports and autonomy required for tenants who have mental illness is under
debate. Many advocate for a continuum of options and that persons should graduate from most to least
autonomous arrangements. Supported housing as defined by SAMHSA provides a residential placement
separately operated from support services, a high degree of community integration and tenant autonomy.
Community residences provide housing and support services in one setting, with services a requirement of
housing. Is it necessary to traverse the residential continuum from least to most autonomous? The project
was a follow-up to the New York/New York Housing study and was conducted in collaboration with the
New York City Office of Health and Mental Health Services of the Human Resources Administration, the
Center for Urban Community Services, and Pathways to Housing.

Accomplishment:
Researchers determined that even individuals initially considered
least likely to benefit from supported housing had favorable tenure in supported
housing. Consumers placed in supported housing had greater satisfaction with their
housing than those placed in community residences.

Highlights
Phase I of this study examined the operations and ecology of 11 housing
sites: two that met the SAMHSA definition for Supported Housing and nine that
collectively represent community residences. Fidelity assessments showed that the two
housing model types were well differentiated. However, the two models of supported
housing had distinctive differences in definition of the problem to be solved, target
clientele, potential supporters, and neighborhood development strategy but
commonalities in their approach to client independence. In Phase II, data were collected
to test the hypothesis that there is no difference in outcomes among tenants in supported
housing in comparison to those in community residences. The analyzable sample was 138
individuals with substantial histories of homelessness. The design was non-randomized
requiring propensity scoring in statistical analysis. To overcome problems of not being in
initial placement housing at the time of interview, a true stayer analysis as well as an
intent to treat analysis was performed.
There were no significant differences in residential stability for individuals in
supported housing when compared to those in community residences.
Persons in supported housing compared to those in community residences had
significantly greater housing satisfaction overall and in particular on autonomy
and economic scales.
Some persons in supported housing at 18 months reported significantly greater
isolation scores that did those in community residences.
Independent of housing model, baseline depression/anxiety symptom scores
increased the risk of poor outcomes.

Impact
Supported housing is a viable portal of entry into community housing for persons
with severe mental illness exiting homelessness.
Clinical attentiveness to depression and anxiety is called for independent of
housing model.

Researchers:
Carole Siegel, Ph.D., Judith Samuels, Ph.D., Kim Hopper, Ph.D., Sue
Barrow, Ph.D., Kristine Jones, Ph.D., Dei-In Tang, Ph.D., Ilyssa Berg, BS, Frank Lipton,
MD (New York City Human Resources Administration), Anthony Hannigan, MSW
(Center for Urban Community Services), Sam Tsemberis, Ph.D. (Pathways to Housing).

Publications:
Hopper K, Barrow SM: Two genealogies of supported housing and their implications for
outcome assessment. Psychiatric Services, 54(1): 50-54, 2003

Siegel C, Samuels J, Tang D, Jones K, Hopper K. (2005). Tenant Outcomes in
Supported Housing and Community Residences in New York City Under revision for
Psychiatric Services

29

III. 4 Critical Time Intervention applied to Transitional Housing

Background The President’s New Freedom Commission on Mental Health was formed in 2002 as part
of a Presidential initiative to expand opportunities for persons with disabilities. The Commission conducted
a year-long in-depth examination of the nation’s system of public and private sector care for individuals
with mental illness. Under the theme, Excellent Mental Health Care is Delivered and Research is
Accelerated, the Commission made a number of recommendations that would enable persons with mental
illness to participate fully in community living. The model in this ongoing study was cited.

Accomplishment:
The President’s New Freedom Commission on Mental Health cited
the housing model studied in the Center study of homeless families who receive time limited
intensive case management along with transitional housing.

Highlights
Researchers are studying the social outcomes attained by both mothers and
children in homeless families when subsidized housing and Family Critical Time
Intervention are provided. The supportive housing approach for homeless mothers with
mental illness and substance abuse disorders caring for dependent children within shelters
aims to provide effective, time-limited, and intensive intervention strategies to them in
lieu of lengthy housing readiness programs provided prior to housing. The project has
joint SAMHSA and NIMH funding.
The study group consists of 228 families being followed over a 15-month period.
Mothers enrolled in the study tend to be poorly educated, have meager work
histories, and face multiple medical, mental health and substance abuse problems.
Their children’s lives have lacked stability.
The experimental study challenges the prevailing assumption that homeless
mothers require an extended stay in congregate shelter living before they are
ready to manage households on their own.
The Freedom Commission noted that the model provides for a focused team
approach to service delivery aimed at reducing homelessness, and brokering and
monitoring appropriate support arrangements to ensure continuity of care.
These aims can be addressed by buying into services from collaborators and
involved agencies, acquiring needed housing resources, evaluating the project
with respect to model fidelity, and attaining ongoing involvement of practice
innovators.
Caseworkers have been given reduced caseloads in order to focus intensively on
these families.
Data collection and analysis is ongoing.
A manual to guide program replication will be available at the conclusion of the
study.

Researchers:
Judith Samuels, Ph.D., Marybeth Shinn, Ph.D., Nancy Travers, Dan
Herman, Ph.D., Alan Felix, Ph.D. Consultants: Carole Siegel, Ph.D., Kim Hopper,
Ph.D.

30

B. Welfare

III. 5. Pathways through Temporary Assistance for Needy Families-TANF)

Background
Welfare reform set limits on the length of time recipients may receive public assistance.
This project aimed to understand whether undiagnosed mental health problems and exposure to violence
affect women's ability to meet the requirements of the welfare system and to move from welfare to work.
The study was conducted in collaboration with the NYC Human Resources Administration and New York
University.

Accomplishment
In a screening of 568 women at four NYC job centers, mental
health problems were found to be far greater than anticipated.

Highlights
Screening instruments used included the MINI diagnostic interview and the CESD
inventory of depressive symptoms. A Center developed computer-assisted
interview program was also utilized.
43% of the women screened were found with symptoms of depression warranting
referral for further examination. A high proportion also reported symptoms of
agoraphobia. 67% of these women accepted the referrals made. Respondents who
completed the interview in Spanish (196) were more likely to be eligible for
referrals (51%) than those who completed the interview in English (40%).
Rates of co-morbidity were high. The majority of women who were eligible for a
referral either had a high CES-D score, were diagnosed with depression or
generalized anxiety disorder. A small number of women (10) received a referral
from a single diagnosis of agoraphobia. All other diagnoses (including
Obsessive-Compulsive Disorder, PTSD, Mania, Dysthymia, Panic Disorder and
Social Phobia) were co-morbid with at least one of these four diagnoses
(depression, anxiety, agoraphobia or high distress on CES-D).
Experiences of violence were prevalent. 36% reported having been robbed
without the use of force, 27% reported with the use of force. 20% experienced
forced sex. Other stressful events included seeing others injured (49%), having
heard a gun fired from their home (33%), having lived in an unsafe place (33%),
having had a partner or child die (18%) and knowing someone who committed
suicide (22%). Domestic violence was a serious problem: 35% had been granted
an order of protection at some point and 9% reported currently having an order of
protection against someone. Preliminary analyses suggest that reports of violence
are highly related to mental health symptoms.

Impact
Determining whether interview responses are related to problems with welfare
and work will provide further evidence about the linkage of interview reports with
functional impairment in important life domains.

Researchers:
Mary Beth Shinn, Ph.D., Mary Jane Alexander, Ph.D., Frank Lipton, M.D.

31

C. Criminal Justice System

III.6 Arraignment of offenders with severe mental disorders

Background
This project aimed to determine the roles of mental health resources and interventions in
the criminal justice system, and to use that information to better understand how and why criminal justice
system personnel make particular decisions involving the processing during arraignment of offenders with
severe mental disorders committing low-level offenses.

Accomplishment
Semi-structured interviews with key criminal justice personnel
revealed that persons with mental illness who enter the criminal justice system for low level,
non-violent offenses are unlikely to receive referrals to the mental health system
and have their underlying problems addressed.

Highlights
Opportunities for intervention, assignment to treatment or release to mental
health programs are bypassed in the “arrest-to-arraignment” phase of the
criminal justice system.
Lawyers, judges, court and correctional personnel tend to lack understanding of
mental illness and either do not know that treatment programs are available or
how to access them.
Mental health evaluations are not conducted until detained individuals actually
enter the jail system, up to 48 hours after arrest, leaving the mentally ill person
confused and frightened.
The criminal justice system in New York City has only 736 beds for about 1,800
persons with severe mental illness.
Behavior in detention based on psychiatric symptoms is likely to be perceived as
willful and defiant and may lead to an escalation of charges and punishment.
In the “sentencing and release” phase, judges and prosecutors express distrust of
the mental health system’s ability to supervise individuals suspected of a
propensity for violence.
When alternatives to detention are considered, they often prove difficult to
arrange.

Impact
Court and correctional personnel should receive training that provides an
adequate understanding of mental illness and of the capacity of the mental health
system to manage individuals involved in low-level offenses.
The criminal justice system needs to be equipped to conduct early screening and
to make available appropriate services in prison.
Mechanisms need to be developed to improve communication between the
mental health and criminal justice systems.

Principal Investigator:
Colleen Gillespie, Ph.D

32

III. 7 The Nathaniel Project

Background
Estimates suggest that between 10 and 20% of people in jails and prisons have a serious
mental illness. Many are in the criminal justice system for reasons indirectly or directly related to their
mental illness. This group would include homeless people whose psychotic episodes occur in the public
arena and who may commit low-level “survival” crimes to make it on the street, individuals whose
behavior led family members to call the police for help, and dually diagnosed people whose addiction has
repeatedly resulted in arrests and incarcerations for buying and sell drugs. Recent attention has focused on
ways of minimizing the “criminalization” of those with mental illness.

Accomplishment
The Nathaniel Project, an award-winning NYC program offering
an alternative to incarceration for people with serious mental illness charged with
felony offenses, brokers arrangements between the criminal justice system and
community providers in line with goals of participants. Preliminary indications are that
it has been successful in keeping people stably housed and out of trouble. Its
replication requires an understanding of what makes it work. The study identified the
philosophical underpinnings, operating principles, informing values and actual
practices of the Nathaniel Project.

Highlights
Participants included program enrollees, court personnel (judges, defense
attorneys, and prosecutors), and community-based providers (supportive and other
housing providers, mental health and substance abuse treatment providers). Data were
collected over a year in a field-based process: interviews (n=32 interviewees) and focus
groups (n=5) with program staff and participants, targeted field observations (n=16
activities), and shadowing of four different staff members (in court and during staff-client
interactions and interactions with providers). Fieldnotes and transcripts were analyzed by
identifying and coding the essential elements of the program, determining the values and
principles reflected in each element, and then organizing the emergent values and
principles into a conceptual schema.
Core operating principles identified included:
Building and maintaining relationships by extending respect and
engendering trust among its participants and partners.
Serving bridging and buffering functions as well as helping clients reframe
and contextualize behaviors.
Being accountable –staff felt that they must always be there for all
participants, which in turn, showcased the degree of commitment required
by staff. Such commitment was accompanied by the following themes: shouldering responsibility,
burn-out, work/life imbalance, high thresholds for tolerating frustration and ambiguity,
autonomy, and the rewards that result from making the systems work for felony offenders
with serious mental illness.
Having shared views on problems that the Nathaniel Project solves and the
strategies that can be used to solve these problems most effectively
Having shared values, philosophies, principles and goals that inform
everyday practice.
Viewing reentry into the community as a brand new effort at
independence and stability outside of institutional realms. For the vast
majority, life in institutions was much more normative than life in the
community – from foster care to psychiatric hospitalization to
incarceration, their lives were marked by infrequent, short-lived, and
chaotic community tenures.

Impact
Boundary spanners need to do a little work of both systems in order to create a
seamless integration.
Substantial time, effort, and funding resources are necessary to do boundary
spanning work.
Reframing the concept of “reentry” to creating a life in the community.
Help to inform applied anthropology paper, “Redistribution and its Discontents”,
forthcoming in Human Organization

Researchers
Colleen Gillespie, PhD, Kim Hopper, PhD, John Jost, PhD, Megan McDonald, MA,
Jessica Anthony, MPA

Top of Page

34


IV. Recovery and Enhancing Consumer Capabilities

A. Recovery
IV.1 Conference on Work of Recovery: Implications for Psychiatry and Research
Background In 1994, there was little focused activity on the concept of recovery from the consumer
focus.

Accomplishment
In collaboration with multiple stakeholders, the Center formulated
a research agenda on the process of recovery, which it pursued during subsequent
years.

Highlights
Early in the Center’s history (October, 1994), a conference was held
that brought together more than 80 mental health service recipients, practitioners, and
researchers in a collective effort to rethink the meaning of recovery and formulate a
research agenda. Co-sponsored by the Center and the New York State Office of Mental
Health's Community Support Programs, with funding from the Center for Mental Health
Services, speakers included psychiatric survivors, individuals active in the
consumer/recipient movement who presented personal reflections on recovery, and
professionals in the field. Among these were: Richard Warner, MD, a psychiatrist and
anthropologist well known for his epidemiological work on the differential rates of
recovery and interventions to facilitate the recovery process, Dan Fisher, MD, Ph.D.,
Executive Director of the Mental Health Empowerment Project who now serves on the
President’s Freedom Commission on Mental Health, consumer survivor advocates Sally
Clay and Amy Long, and Ed Knight, Ph.D., now a vice-president at Value Options and
member of the Center’s Executive Committee, Julian Rappaport, Ph.D., a researcher who
has worked with mutual help organizations for individuals in recovery, and Anne Krause,
a peer advocate at the Mental Patients Liberation Alliance.
Over the course of the two-day meeting, participants had the opportunity to:
Review research findings and hear personal narratives that illuminated aspects
of the work of recovery; learn more about how the process of recovery
unfolds and what facilitates it; and examine how individual practice or
research might relate to recovery.
Explore what the experience of and reflections upon recovery might mean for
the development of a mental health services research agenda and the research
process of formulating questions, designing methods, pursuing answers,
sharing results, and contesting the interpretations.
Begin to build a foundation for future collaborations among recipients,
practitioners, policymakers, and researchers.
According to conference coordinators, "The conference was generally seen as a
good first step in rethinking our long range research agenda and research process,
introducing the concept of widespread consumer involvement in the Center, the Nathan
Kline Institute, and academic settings, and identifying a number of potential research
areas relevant to the experience of recovery."

Impact Out of this early conference, a research agenda ultimately emerged that
has remained with the Center for 10 years and brought to fruition many of the projects
found in this summary.

Publications:
A videotape of the conference is available upon request.

Also see: Report of Recovery Conference

36

IV.2 An Instrument to Measure Recovery

Background
Agreement on the construct of recovery from mental illness or understanding how
recovery takes place is lacking. Instruments measuring recovery cited in the literature are few in number,
generally fail to provide information about how change occurs over time and have not been attuned to
regional variations.

Accomplishment:
An instrument measuring the recovery process was developed in
conjunction with consumer groups.

Highlights
A recovery model developed by a consumer group became the basis for
selecting items and scales for inclusion in a proposed instrument to monitor the recovery
process. Cultural sensitivity, language, literacy and reading levels were considered in
constructing items for the instrument. Consumer groups played a major role in the final
product developed.
Consumer/survivors defined the stages of recovery that they had personally
experienced. Recovery was seen as a process that begins with feelings of anguish
and leads to problem awareness, insight, action, and an acquired determination to
be well and attain a sense of well-being. The order these stages are acquired
varies among individuals. While internalized dimensions of recovery are
cognitive, emotional, spiritual and physical, external dimensions include
interpersonal and situational reactions to outside influences. Activity, social
support, social relations and independence in taking care of one’s self abets the
recovery process.
About 100 items based on these stages were selected for inclusion in an
instrument measuring the process.
The developed instruments were pilot tested and validated with a population of
more than 100 consumer/survivors.
The consumer-validated instrument holds promise in planning cost-effective
approaches leading to positive outcomes.
Further study is needed to provide construct and criterion validity for these
measures.

Researcher:
Ruth O. Ralph, Ph.D. (Edmund S. Muskie School of Public Service,
University of Southern Maine)

Publications:
Ralph RO, Kidder K (2000). What is recovery? A compendium of recovery and recovery
related instruments. Cambridge, MA. Human Services Research Institute.

Ralph, RO (2000). Review of recovery literature: A synthesis of a sample of recovery
literature. Alexandria, VA: National Technical Assistance Center. generally fail to
provide information about how change occurs over time; and are not attuned to regional
patterns.

37

B. Choice

IV.3 Evaluation of the NYC Involuntary Commitment Program

Background
In the 1990s, the New York State Legislature enacted a pilot program to test involuntary
outpatient commitment orders. The program targeted persons with mental disorders who had two
involuntary admissions to mental health facilities within an 18-month period and were clinically judged to
be incapable of surviving safely in the community without supervision. New York City designated
Bellevue Hospital as a test site. The enabling legislation provided for an evaluation of the pilot program. A
patient group court-committed to out-patient treatment was compared with a control group attending
treatment voluntarily. Participants in both groups received intensive, enhanced services.

Accomplishment
Study of involuntary commitment orders for outpatient treatment
found no significant statistical differences on outcome measures between individuals
court-committed and those receiving services voluntarily. Court orders were useful in
gaining the participation of a limited number of subjects. When assertive, enhanced
services are offered, both groups benefited.

Highlights
The evaluation design included interviews with consumers at baseline and
three follow-up points; interviews with community providers; descriptions of program
characteristics and the service system; ethnographic follow-up of subjects to assess their
functioning in the community; and focus groups to examine the perspectives of family
members and consumers affected. The evaluation component was integrated directly into
the treatment services (pre- and post-discharge) and the court proceedings. Subjects were
enrolled and randomly assigned to either an experimental group (receiving court-ordered
commitments to enhanced treatment services) or to a control group (enhanced services
provided on a voluntary basis).
Court-ordered subjects were slightly more likely to be re-hospitalized, but
stayed for briefer periods and were less likely to be transferred to a state
facility. Those with co-occurring mental illness and substance abuse disorders
were the ones most likely to be re-hospitalized.
Both groups -- court-ordered and voluntary -- were hospitalized less often
while receiving enhanced services, as compared with the prior year when they
were not receiving enhanced services.
There were no documented incidents of violence by either court-committed or
voluntary individuals during the follow-up study period.
Court-ordered subjects were more likely to drop out of treatment than those
attending voluntarily. .
Clinicians viewed court orders as useful leverage for only a limited number of
participants.

Impact
Findings complemented those obtained as part of the parallel Duke Outpatient
Commitment study by another research team.
Researchers concluded legal coercion may not play a significant role in
keeping individuals in treatment, and enhanced meaningful treatment made
the difference in obtaining consumer involvement in their programs. The need
is for continued availability of enhanced, assertive community treatment
programs, and the use of court orders in only limited circumstances.

Researchers:
Kim Hopper, Ph.D., Jeanne Dumont, Ph.D., David L. She rn, Ph.D., Henry
J. Steadman, Ph.D. (Policy Research Associates), Marvin Swartz, M.D. (Duke University
Dept. of Psychiatry).

Publication:
Policy Research Associates (1998). Research Study of the New York City
Involuntary Outpatient Commitment Pilot Program.

39

IV.4 Psychiatric Advance Directives

Background
Psychiatric Advance Directives (PADs) are legal instruments that allow competent
individuals to appoint proxies and specify how treatment decisions should be made in the event they
become incompetent. Established legal mandates and expectations for PADs are not matched by empirical
evidence documenting their actual implementation. The aim of this study was to explore the interests,
concerns and planning activities of mental health consumers contemplating such directives.

Accomplishment:
Mental health service users found PADs to be especially meaningful
by providing them with the expectation of being treated as responsible individuals in
their future interactions with the mental health system.

Highlights
Standard qualitative research techniques were used: field observations,
interviews, focus groups, archival research and key informant interviews. A sample of 33
individuals participated in the consumer interviews and focus groups. Interviewees
included those who decided to prepare PADs as well as those who declined. Transcripts
were coded and analyzed for thematic content.
NYS-wide formal training sessions helped nearly 6000 participants
conceptualize how PADs work in one’s life, mobilize resources, review past
experiences and assess risks.
PADs are best thought of as complex planning tools for psychiatric case
management, rather than as a means to enforce compliance with treatment
decisions. .
Drawing up a PAD is demanding and consequential: It allows individuals to
accept responsibility for managing their illness, anticipate future planning to
forestall harmful interventions and ensure treatment of proven benefit, hold on
to one’s self-identity, and provide a new form of cooperation between
consumers and the system.
PADs afford the means that allow a consumer to take seriously the
orchestration of one’s treatment, rather than passively being its object.
Among individuals declining to construct a PAD, there was little trust in the
mental health system.
PADs require intense training and follow-up.

Impact
Further study is needed to assess the system’s response to PADs.

Researchers:
Michaela Amering, MD, Peter Stastny MD, Kim Hopper, Ph.D.

Publication:
Amering M, Stastny P, Hopper K (2005). Psychiatric advance directives:
qualitative study of informed deliberations by mental health service users. British Journal
of Psychiatry, 186:247-252.

40

C. Motherhood

IV. 5. Motherhood and Mental Illness Conference

Background
In order to both call attention to this paucity of research on
mothers with mental illness in the mental health system and to begin formulating
a research agenda to redress it, the Center convened the Motherhood and Mental
Illness Conference: How Systems Create Barriers to Parenting in April 2003.
This conference brought together multiple stakeholders from diverse sectors of
the mental health sphere to discuss the ways in which public systems influence
parenting among those with mental illness and to develop strategies for improving
and integrating systems of care for mothers with mental illness and their families.

Accomplishment
Conference participants identified fundamental barriers to
successful motherhood posed by the constellation of systems that confront
families headed by mothers with mental illness.

Highlights
Mothers with mental illness have been neglected within the very
systems designed to serve them.
Most programs look at and work with mothers as individuals,
excluding their partners and children in the recovery process.
Lack of childcare makes mothers' participation in program activities
and gainful employment difficult to impossible.
The absence of insurance coverage for mental health counseling
creates a barrier to the access of preventative services.
Many barriers to help and innovation exist within the legal framework
that surrounds mothers with mental illness when they become
involved in the multiple public systems.
Social and relational barriers also exist, in the now-familiar form of
stigma and as part of the trend in disintegrating family and social ties.
The need to do things differently, to overcome the aforementioned
barriers is critical to improving the outcomes of mothers and their
children.
Researchers, advocates, practitioners, policy makers, consumers, and
others who have a vested interest in the field need to ensure that the
various factions of the social service system work collaboratively in
delivering services to mothers and their children and overcome the
barriers that impede success.
Participants in all of the workshops agreed that too much energy is put
into identifying what we do not have rather than what can we do
differently.
Proposals made included the creation of multi-system interventions --
a “continuity of care.” To do so will require the utilization of creative
grass roots solutions like combining funding sources, waivers of
regulations, inter-agency collaborations at local levels, and multidisciplinary
staff training.
The parenting role needs to be addressed within the recovery
paradigm.

Impact
Several attendees of this conference meet on a regular basis to
discuss and plan for future collaborative projects.

Conference Planning Group:
Judith Samuels, Nathan Kline Institute: Chair
Andrea Ault, Nathan Kline Institute: Logistics Coordinator
Mary Jane Alexander, Nathan Kline Institute
Susan Barrow, NY State Psychiatric Institute
Susan Davidson, Gains Center, Policy Research Associates
Colleen Gillespie, New York University
Denise Juliano-Boult, National Institute of Mental Health
Terese Lawinski, Nathan Kline Institute
Susan Salasin, Substance Abuse and Mental Health Service Administration
Beth Shinn, New York University
Lynn Videka-Sherman, State University of New York, Albany
Beth Weitzman, New York University

Publications
Blanch AK, Nicholson J, Purcell J (1994). Parents with severe mental illness and
their children: The need for human services integration. Journal of Mental Health
Administration, 21.4: 388-9


Hopper, K. et al. (1997). Homelessness, severe
mental illness, and the institutional circuit. Psychiatr.Serv, 48(5):59-65.

Nicholson J, Blanch, A (1994). Rehabilitation For Parenting Roles For People
With Serious Mental Illness. Psychosocial Rehabilitation Journal 18:109-11.

Video:
Available from Center

See also: Motherhood and Mental Illness Conference

42

IV. 6 Invisible Mothers: An Exploratory Study of the Contact, Caretaking, and Custody
Arrangements Negotiated by Women with Severe Psychiatric Disorders in the New York
City Shelter System

Background.
A virtually unknown domain of unmet need is the circumstances of motherhood among
homeless women with severe mental illness residing apart from their children in shelters for “single”
adults. Though early homeless studies had documented that a majority of sheltered homeless women were
mothers and that many attached great significance to their parenting roles, their needs as mothers were
largely invisible to both homeless service systems and to mental health providers.

Accomplishment
The project confirmed the importance of parenting issues for
homeless mothers with severe mental illness, identified factors that fostered ongoing
contact, and documented the virtual absence of service support for parenting by
separated homeless mothers. It also identified the multiple systems that are involved in
lives of homeless women as a source of significant barriers to parenting.

Highlights
This project (1) analyzed existing data on sheltered women to examine
parenting goals and service needs, mother-child contact, care-giving arrangements, and
reunification; and (2) for a sample of currently homeless mothers, examined in greater
depth the circumstances of separation, the children’s living arrangements, and the
parenting process and goals from the multiple perspectives of the mothers, the caregivers
of their children, the homeless service providers working with them on housing and
mental health issues, and providers of family and foster care services.
Among 80 separated mothers diagnosed with severe mental disorders, a
majority desired services to address contact and custody issues, hoped to
reunite with their children, and maintained contact with at least one child.
Mothers who had been in drug treatment, those receiving financial
entitlements, and those whose own relatives were caring for their children
were more likely than others to maintain contact with their children.
Two years after being referred to a mental health case management
program, slightly under half were housed in supportive or independent
housing, but only 8% were living with any of their children.
While mothers were in contact with a variety of service agencies, they
received virtually no support for parenting from service providers;
moreover.
Conflicting demands of homeless services, mental health providers,
substance abuse treatment programs, child welfare agencies and family
courts consistently impeded their efforts to remain involved with their
children.

Impact:
There is a need for providers of homeless and mental health services to focus
attention on parenting needs of mothers separated from their children.
A larger examination of conditions and contexts of separations in homeless
families with maternal mental illness or substance abuse is being conducted as a
site-specific component of the Westchester site in SAMHSA’s Homeless Families
Program.
The development of a new line of work on parenting capabilities as a central
domain in recovery-focused approaches to mental health services is being
undertaken as a result of this study.

Researcher
Susan M. Barrow, Ph.D.

Publications
Barrow, Susan M. (2004). Family separations and reunifications. In: D. Levinson (Ed.),
Encyclopedia of Homelessness. Thousand Oaks, CA: Sage, pp. 156-161.

Barrow, Susan M. & Lawinski, Terese (submitted). Conditions and contexts of mother-child
separations in homeless families. Under review.

44

D. Employment

IV. 7 Creating a Stake in Working

Background
This study examines factors that increase the likelihood of employment among persons with
mental illness who reside in supportive housing. This was part of a nation wide study examining
employment initiatives at three supportive housing sites.

Accomplishment
Researchers found that providing employment opportunities for
persons with severe mental illness enhances their self-esteem, and may promote
recovery.

Highlights
During a two-year period at two of the sites, residents – some with long-standing
problems of substance use and/or psychiatric disorder – worked 7 to 8 months
longer than they had in the two years before the initiative.
When employment opportunities were offered, persons with mental illness
consistently expressed their willingness to work.
In creating a stake in working, several factors seemed to make a difference to
various residents: the necessity to earn income in order to sustain a rent subsidy;
the desire to renew family ties; the wish to undo the status of “second-class”
citizenship that comes with not working; and the need to test one’s own progress
in recovery and move toward a more normal life.
Success in the workplace was more likely when business made affirmative efforts
to accommodate persons with severe mental illness.

Impact
Both supported employment and affirmative enterprises (businesses established to
employ persons with disabilities) should be encouraged in order to boost working
rates among persons with severe psychiatric disorders.
The distinction between disability-related difficulties and “social skill” deficits
can be a tricky one. Employers may need ongoing assistance (perhaps through
designated “brokers”) to ensure skill development and job retention.

Researcher:
Kim Hopper, Ph.D.

Publication:
Hopper K, Rog DJ, Holupka CS, Davidson C, Lester R, Roy K (1997, 1998).
Documenting and evaluating. Next step: Jobs. Interim and final reports to the Corporation
for Supportive Housing, New York.

45

IV.8 Employment Profiles of Persons with Severe Mental Illness in the Workforce

Background
It is important to document that people with mental illness can work. Findings from national
surveys of employed persons with mental illness conducted between 1984 and 1991 were analyzed to
answer questions of who is working, and what factors increase the likelihood of employment.*

Accomplishment:
Analysts found sizeable proportions of persons with mental illness
hold gainful employment; some have substantial earnings.

Highlights
Data were used from the Institute for Social Research, Survey Research
Center (1992),National comorbidity survey; National Center for Health Statistics (1991,
1996), the public use data files for the mental health supplements to the 1989 and 1994
National Health Interview Surveys. Hyattsville MD: Division of Health Interview
Statistic.; National Institute of Mental Health (1992)and the ECA study public use data
tape NTIO #PB 92-503481. Employment and earning rates for persons with severe
mental illness vary by DSM diagnostic criteria. Variables that especially increased the
probability of employment and greater earning capacity were participation in outpatient
therapy, abatement of symptoms, and the number of years that had elapsed since
symptom relief. However, whether or not a person received psychotropic medication did
not significantly correlate to employment.
High rates of employment were noted for individuals diagnosed with major
depression (64%), and bipolar disorder (64%).
Earned annual wages for those with bipolar disorder ($20,315) by standards for
the period analyzed were greater than for the general population.
Individuals with substance and alcohol abuse disorders also had employment rates
at the high end of the scale.
Individuals diagnosed with schizophrenia had the lowest employment rate (43%),
and least earnings ($10,761).
Persons with anxiety and affective disorder also had relatively low employment
rates.

Impact
To aid in destigmatizing campaigns, it is important to document that people with
disabilities can work.

Researchers:
David O’Neill, Ph.D., David N.Bertollo, BA.

Publications:
O’Neill D, Bertollo D (1998). Work and mental illness: Perspectives from
three national surveys. Administration and Policy in Mental Health, 25:3.

46Top of Page


V. Policy Input: Quick response projects

V.1 Potential for Cost Shifting under Parity Legislation

Background
A feared negative consequence of parity legislation to equalize mental health benefits with
those provided for other illness is that private insurers may find ways to exclude enrollees or their
dependents with severe mental illness, effectively shifting costs from the private to the public sector. This
is based on their belief that under parity legislation their costs for mental health benefits would increase as
individuals make greater use of their private insurance for mental health benefits.

Accomplishment:
The scene before the enactment of parity legislation finds that there
is a pattern of movement from the private to the public sector. Response to parity
legislation needs to take into account this “baseline” movement.

Highlights
Researchers analyzed the cost interface between the private and public
sectors for two periods preceding the implementation of parity. Focus was on privately
insured specialty mental health users that included a high percentage of persons
diagnosed with severe mental illness, within two counties – urban and rural – in New
York State. Data analyzed were on services received and paid for through indemnity
insurance, HMO, public, or self- pay arrangements. Findings were submitted to NIMH
and were included in their report to Congress on parity.
While the number of persons shifting from private to public payers was minimal,
the two year period, the rate increased.
A greater number of persons, often those incurring high service costs, shifted
from private to shared private/public payers and the rate increased over time.
Persons in this group more often included the dependents of insured persons,
younger individuals, members of cultural minorities, and those with substance
abuse problems.

Impact
Public payers will be able to make use of this information to refine estimates of
desirable capacities and expected mental health costs for publicly funded services.
This information will be helpful in negotiating rates for contracted services with
for-profit and not for-profit providers and behavioral health care entities.
Legislators need to be aware of the potential for private insurers to exclude
dependents with mental illness from their plans.

Researchers:
Carole Siegel, Ph.D., Judy Samuels, Ph.D., Joseph Wanderling, MS

Publication:
Siegel, C, Samuels J, Wanderling J (2001). Cost-shifting from private to
public payers: The scene before parity legislation. Journal of Mental Health Policy and
Economics, 4:17-23.

47

V.2 How to Estimate Capacity Requirements for Mental Health Services Post-
Disaster

Background
In the chaotic aftermath of a disaster, authorities are faced with the need to provide an
extensive array of services to the affected population, as occurred following the 9/11 WTC crisis in New
York when mental health and other related support systems mobilized to deliver services to persons
impacted by the event.

Accomplishment
A mathematical algorithm to estimate the extended mental health
needs and service capacities required in the event of unforeseen disasters was specified.

Highlights
Planning efforts require estimates of both anticipated mental health needs
and the mental health system’s capacity to respond to this need. While many formal
systems can describe their current capacities, sparse data exist on current services and
supports used by people with mental health problems outside of these. Also, no
systematically collected data are available on mental health needs and services offered
following disasters impeding planning for the future.
Extended capacity requirements is a function of the number of persons affected
and the number of anticipated services that will need.
Systematic data collection efforts on persons affected and services offered
following disasters on the national, regional and local levels are needed to
enhance effective planning.
Surveys are needed to determine resources where people turn for help outside of
the formal mental health system. The extent of assistance by the non-mental
health sector in offering helping services needs to be understood and included in
planning efforts. Clergy, native healers and other non-traditional service providers
need to be consulted and included in planning for anticipated mental health needs.

Impact
This project led to the two projects described below.

Researchers:
Carole Siegel, Ph.D., Eugene Laska, Ph.D., Morris Meisner, Ph.D.

Publications:
Siegel C, Laska E, Meisner M (2004). Estimated capacity requirements for mental health
services after a disaster has occurred: A call for new data. American Journal of Public
Health, 94(4) 582-5.

48

V.3 Estimation of Additional Capacity of the Mental Health Sector to meet
Extended Service Demands

Background
Budgets appropriated either nationally or locally to respond to the mental health needs of
populations following disasters should be based on a reasonable model to provide data estimates.

Accomplishments
An estimate of the ability of the NYC specialty mental health system
to respond to mental health needs in the wake of 9/11 in terms of deployment of “first responder”
existing staff was simulated and indicated that considerable shortfalls
would occur if only existing OMH resources were deployed.

Highlight
Unexplainable variation in clinical service delivery rates suggested that
clinical production rates could be increased. But even with increased production,
substantial shortfalls remain.
Percent increase in services that could be produced was conservatively estimated
at 12% resulting in a simulated 6-month shortfall of 77%. This was based on a
population estimate of need of 3%.

Impact
The estimates suggest that additional funding and personnel are needed to provide
mental health services in the event of a major disaster
A disaster plan is needed to coordinate the use of current and additional personnel
including mental health resources from other sources and sectors

Publication
Siegel C, Wanderling J, Laksa E (2004). Coping with disasters: Estimation
of additional capacity of the mental health sector to meet extended service demands.
Journal Mental Health Policy and Economics, 7(1):29-35.

49

V.4 Working Clergy and Mental Health

Background The long – and long-troubled – relationships between working clergy and formal mental
health providers has received little attention from the mental health side. Concerns about inventorying
informal resources as part of public disaster preparedness may be changing that. This project was
undertaken under contract to the New York City Department of Health and Mental Hygiene (DOHMH) to
provide information from front-line faith-based sources of care to assist them in developing the mental
health components of a disaster preparedness plan for the City of New York. Interviews were geared
toward assessing self-perceived need for, and interest in, psychiatric expertise as it bears upon pastoral care
under both ordinary and crisis circumstances. Two intertwined projects resulted: the first sought a
provisional assessment of the mental health-related training and consultation needs of everyday working
clergy; the second was a targeted assessment of the clergy’s prospective role in the mental health aspects of
disaster preparedness.

Accomplishment
These paired studies sought to identify and provisionally assess the
strengths of working clergy as mental health service providers and referral sources –
and their potential in disaster preparedness especially – and the likely sources of
difficulty in seeking to enhance these strengths and develop that potential.

Highlights
In the first phase, prospective interviewees were identified in snowball
fashion, beginning with critically-placed key informants, who held responsible positions
in teaching institutions or faith-based “trade organizations.” Most were in community
congregations; a few were hospital-based. Some had parallel therapeutic practices, in
additional to the congregational responsibilities. And a few were clergy specializing in
disaster-related trauma relief. Using a semi-structured interview guide, we interviewed 26
clergy members, from Islamic, Episcopalian, Baptist, Lutheran, Buddhist, Jewish, Roman
Catholic and Presbyterian associations. Interviews were almost all in person (a few were
conducted by telephone), lasted roughly an hour, and were typically done in teams of
two. Structured summaries were prepared for each interview, which were then read and
coded independently by 3 team members, who then met to discuss readings and reach
consensus on a common coding protocol.

Five themes emerged:
Everyday practice deals with practical survival issues and (non-stigmatizing) help
for emotional/family problems as much as spiritual crises.
Self perceived mental health training and competency range widely, and affect
ease with which need for appropriate referrals was assessed.
Great variation in referral resources/practice reflects prior training and networking
– but little affirmative outreach seems expected from the mental health system.
Informal referral advice from congregation members raises confidentiality issues.
Prospects to enhance experience and training were received favorably, not only to
improve pastoral role but self-care as well.
Prospective role of mental health system.

Phase 2 focused on disaster preparedness and was conducted through a year of field
study, conference work, and interviews. Interviewees were identified in snowball fashion;
we were looking for experienced key informants who have a bird’s eye view of the
relationship between disaster mental health and clergy. Some of the ensuing
conversations took the form of formal interview, during which we took notes and
peppered sources with questions (as with 10 organizational leaders in NYC). Many more
took the form of conversations, over the electronic transom, over lunch, or at the three
conferences at which the clergy’s role in disaster preparedness was explicitly addressed.

Impact
With respect to everyday work:
Despite a wide range of training and experience, all working clergy evinced keen
interest in enhancing mental health literacy and skills – if only referral.
Religious clergy are positioned (and perceived) to offer non-stigmatized help for
problems for which some people would only reluctantly seek help for otherwise.
Despite recognizing a need for greater collaboration, clergy remain skeptical of
the formal mental health, suspecting that it sees clerical counterparts as second class
providers.
Working collaboratively with indigenous experts – clergy trained in pastoral
counseling and/or psychotherapy as well as those with extensive teaching
experience – could bridge that breach and offer regular training, upgrading of
relevant skills, and referral assistance.
A singular challenge (identified but unmet during our interview process) is
reaching the more marginalized (or less affiliated) “storefront” churches,
ministers and congregations, especially in communities of recent immigrants.
With respect to disaster preparedness:
Specific tools, developed collaboratively with members of the religious
community – curricula, information sheets, resource directories, and guidelines in
dealing with mental health, disaster and terrorism – would be helpful.
Again, great collaboration between religious groups and formal mental health
system is needed well in advance of the heightened needs of disaster response.
Preparedness should build on existing networks of community based
organizations (CBO) and religious groups.
Providing pragmatic training resources for clergy that helps to educate them about
the wider network of service resources would be important first step to meeting
service gaps

Researchers
Kim Hopper, PhD, Joshua Moses, M.A., Alix Teleki, M.A., Rachel Jones
B.A.

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51

VI. Gateways to Care

V1.1 Emergency Room Decision Making

Background
Emergency rooms are one of the primary portals of care into inpatient care of persons with
mental illness. The way in which emergency room makes decisions regarding admission were not that well
understood. This study was undertaken to examine whether clinical decisions to admit persons with
persistent and severe mental disorder into inpatient care are based on systematic criteria.

Accomplishment
Generally acceptable criteria were delineated. Decision models
based on these were developed and shown to accurately predict clinical determinations
about which persons seen in psychiatric emergency rooms need to be admitted to
inpatient care.

Highlights
Based on assessments of more than 400 patients seen in four psychiatric
emergency rooms, Center investigators developed a model to predict an
emergency room physician’s decision to admit a person with severe mental
disorder to inpatient care.
When tested, the model accurately predicted 85% of actual decisions (87.5%
when adjusted for variations among facilities).
Predictor variables include danger to self, psychosis, ability to care for self,
impulse control, psychopathology, depression, collateral contacts (family/ police/
community), substance abuse, social support and client’s dispositional factors.
Predictor variables with high reliability included those that measured: psychosis
(68.4%), substance abuse (64.9%), and social support (55.2%).
Predictor variables with less reliability included: measures of impulse control
(30.6%), psychopathology (31.1%), and danger to self (32.9%).

Impact
Decision models -- based on statistical models and expert consensus validation –
should be used to contribute to the education and training of clinicians.
Decision making tools based on these models should be used to improve the
quality of decision making for individuals who are in psychiatric crisis.

Investigators:
Bruce B. Way, Ph.D., Jeryl Mumpower, Ph.D., Thomas Stewart, Ph.D.

Publication:
Way BB, Allen MH, Mumpower JL, et al. (1998). Inter-rater agreement among
psychiatrists in psychiatric emergency assessments. American Journal of Psychiatry
155(10):1423-1428.

52

VI. 2 Risk Assessment

Background
In the United Kingdom, an increase in violence and homicides within the mental health
services has been noted. Risk assessment has gained in importance as a tool for determining entry to mental
health services. Inquiries by multi-disciplinary panels have focused on appraisal of predictability and risk.
The recommendations of such inquiry reports have been central to installing risk assessment at the centre of
UK mental health practice. Question is raised about its implication for mental health practice in the United
States.

Accomplishment
A visiting Fulbright scholar at the Center analyzed the implications
of using risk assessment as the de-facto gateway to mental health services in the
United Kingdom. Questions are raised about its implications elsewhere.

Highlights
Since the early 1990s, the UK has seen a remarkable growth in specialist
mental health services for offenders with mental disorders. While community treatment
and a recovery perspective dominate the published agenda for service development, in
practice resources have followed people assessed as presenting a high risk to others. The
centrality of risk management has extended to mental health services generally. This
study aimed to locate clinical ideas of risk in mental health within the theoretical context
of sociological Risk Society theory, describe how of ideas of risk influence entry to
mental health services, clinical practice and the service implications both for people
assessed as high risk and those assessed as outside the high risk domain, and provide a
critique of the service focus on individual risk from a public health perspective.
Within the United Kingdom, risk assessment is evolving to become the gateway
to accessing mental health services.
Risk assessment in mental health is assuming the role once occupied by diagnosis,
placing under surveillance every aspect of service users’ lives. Theories of risk
culture are altering the clientele and social function of psychiatry.
It is likely that at a later stage the day-to-day clinical dimensions of risk will be
explored in structured interviews. This may include also an exploration of the
clinical dimensions of trust, on the hypothesis that at the level of individual
interaction, trust strategies present an alternative or complement to risk strategies.
Comparative analyses of UK and US approaches in mental health should yield
lessons for both systems.

Researcher:
John Wilkinson, Asst. Director for Mental Health, Northeast London
Strategic Health Authority, UK, was on a Fulbright fellowship at this Center in 2003-4.

Publication:
Wilkerson J (2004). Health – the politics of risk and trust in mental health.
Critical Quarterly, 46(3):133-50.

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VII. Methodology

VII.1 Mental Health Indices

Background
While indicators of mental health conditions abound, an index that aggregates
multiple indicators might be of help in trending the course of service development , use and
outcomes.

Accomplishment
Two interrelated indices were designed for New York City: A Mental
Health Index to measure the status of persons with mental illness; and a Social and
Mental Well Being Index to measure the status of residents of the community at large
While the project was conducted for NYC, the methodology can be adapted for other
communities.

Highlights
A conceptual model was developed to describe the relationship between
community mental health and well being outcomes and the domains of influence on these
outcomes. The model is based on two premises: (i) the socio-economic environment of a
community impacts the social and mental well being of its constituents and their risk for
mental illness; and (ii) the provision of social and economic support systems and
behavioral services improves a community's well being and the outcomes of mental
illness. For each index, a set of factors was selected to characterize the domains and
indicators to characterize each factor. The domains included were socio-economic, needs
(represented by the prevalence of mental illness and the size of the community
population), supports available, and outcome represented by the quality of life for the
community at large and for those with mental illness. The project was funded through the
New York City Department of Mental Health, Mental Retardation and Alcoholism
Services (DMHMRAS).

An application of the indices showed:
For the period from 1991 to 1996, the Mental Health Index increased by 11%
over its base year, reflecting a major increase in the availability of community
supports and programs for persons with mental illness, and a moderate growth in
attaining desirable social outcomes.
For the same period, the Social and Mental Well Being Index increased 12% over
its base year, reflecting an expansion of social programs for the community at
large and a high degree of positive social outcomes.
For the years studied, the indexes correlated well with the historical record of the
time: an improved quality of life for New York City residents marked by reduced
crime, homicides, suicides, deaths from unnatural causes, and improved housing
and employment conditions.

Researchers:
Carole Siegel, Ph.D., David O'Neill, Ph.D., Kristine Jones, Ph.D., Eugene
Laska, Ph.D., Morris Meisner, Ph.D., Judith Samuels, Ph.D., Gary Haugland, M.A

Publications:
Siegel, C., et al. (1998), The Development and Construction of Two
Community Indices of Mental Health and Social and Mental Well Being. Final Contract
Report to the New York City Department of Mental Health, Mental Retardation and
Alcoholism Services.

Siegel, C., Laska, E., Haugland, G., O’Neill, D., Cohen, N., Lesser, M (2000). The
construction of community indexes of mental health and social and mental well being and
their application to New York City, Evaluation and Program Planning 23:315-327.

55

VII.2 – VII.5. Cost Effectiveness Research

Background
Intervention studies in health services research are greatly enhanced when they contain a
cost-effectiveness component. These series of projects focused on expanding the statistical methodologies
for conducting cost effectiveness analyses.

Accomplishment
Methodologies were developed for analyzing cost and effectiveness
data in intervention trials in health services research studies. Statistical programs were
placed in the Center’s web site at: Statistical Methods and Computer Programs for general distribution.

Highlights

VII.2. Statistical Methods for Cost-Effectiveness Analyses
o A statistical framework for examining cost and effect data on competing
interventions obtained either from a randomized clinical trial (RCT) or an
observational study to define cost-effectiveness (c-e) measures was
described. Several new c-e measures are proposed that utilize the linkage
between costs and effects on the patient level.
o The cost-effectiveness of interventions are assessed statistically in a two
stage procedure that (1) eliminates clearly inferior interventions, and (2)
then rank orders according to a c-e preference measure.
o These techniques provide methods for obtaining confidence intervals, for
testing the hypothesis of admissibility and for the equality of
interventions, and for ranking interventions.
o A procedure has been programmed in both SAS and Mathematica.

VII.3 Sequential Decision Making in Cost-Effective Analyses
o For resource allocation under a constrained budget, optimal decision rules
have been given for independent, mutually exclusive, and independent
clusters of mutually exclusive programs. Each program has associated
with it a cost and effectiveness. We treat an arbitrary complex structure
that describes hierarchical interrelationships among mutually exclusive
and independent programs.
o A procedure for obtaining an optimal resource allocation for complex
structures has been programmed in Mathematica (version 3.0).

VII.4 Statistical Cost-Effectiveness Analysis of Treatments Based on Net
Health Benefits
o Statistical methods are given for producing a cost-effectiveness frontier
for an arbitrary number of programs. In the deterministic case, the net
health benefit (NHB) decision rule is optimal; the rule funds the program
with the largest positive NHB at each l, the amount a decision-maker is
willing to pay (WTP) for an additional unit of effectiveness.
o A Mathematica program has been developed for this procedure.
56

VII.5 The Family-wise Error Rate of a Simultaneous Confidence Band for
the Net Health Benefit Function
o There is considerable interest in the use of net health benefit (NHB) for
decision making in cost-effectiveness analysis. The method developed
derives a pointwise error rate (PWER) and a family wise error rate
(FWER).
o Procedures have been programmed in Mathematica.

Researchers:
Eugene Laska, Ph.D., Carole Siegel, Ph.D., Morris Meisner, Ph.D.,
Joseph Wanderling, MA.

Publications:
Brent RJ (2004). The role of public and private transfers in the cost-benefit analysis
of mental health programs. Health Economics, 13(11): 1125-1136.


Siegel C, et al. (1996). Statistical Methods for Cost-Effectiveness Analyses.
Controlled Clinical Trials, 17:387-406.


Laska E, Meisner M, Siegel C, Wanderling, J (2001). Statistical Cost-Effectiveness
Analysis of Two Treatments Based on Net Health Benefits. Statistics in Medicine,
20:1279-1302.


Laska E, Meisner M, Siegel C, Wanderling, J (2001). Statistical
Determination of a Cost-Effectiveness Frontier Based on Net Health Benefits.
Health Economics, 11(3):249-264.

Meisner M, Laska E, Siegel C, Wanderling, J. (2001). The familywise error rate of a
simultaneous confidence band for the net health benefit function. Health Economics,
11(3):275-280.

Laska E, Meisner M, Siegel C. Statistics and experimental design. In: Sadock BJ,
Sadock VA eds., (2005). Kaplan & Sadock's Comprehensive Textbook of Psychiatry,
8th edition. Lippincott Willias & Wilkins, pp. 672-686.



57

VII. 6 Counting Methods for Multiple list problems

Background
Population size counts are necessary for administering and planning cost-effective mental
health programs. Methods for statistically estimating the size of a population are required when no simple
way exists for full enumeration or when only limited information is available.

Accomplishment
The method applies to obtaining unduplicated counts of persons
on more than one list. The multiple list method has been applied to count persons
served by multiple systems. It also has been formulated to apply to those who appear
on a capture and recapture list and has been used to count homeless persons.

Highlights
Considered was a common situation in mental health in which confidentiality
constraints limit the information available to the date of birth of each individual
on each list. A method was developed to estimate the number of individuals on
both lists. The method was based on the number of individuals on one list whose
birth-dates coincide with a birth date of an individual on the other list. This
statistic enables calculation of an estimate of the number in common to both lists.
Using the sample distributions of observed birth dates and conditioning on the
size of each list we write the likelihood of the observations. From this, the
maximum likelihood estimates of the size of the population, the probabilities of
appearing on each list and the asymptotic variances of these estimators can be
obtained numerically.

Impact
The need for protection of the privacy of individuals may prevent sharing
identifying information, yet it is important for the payers and managers of mental
health systems to be aware of the number of individuals who use multiple
resources, as well as the number in their catchment area who are mentally ill.
Without compromising their confidentiality obligations, limited information such
as gender, county of residence and date of birth of each individual served by their
respective system may be provided enabling the application of the above methods.
The methodology developed has found practical application in a comparison
study of veterans receiving services from the Dept. of Veterans’ Affairs and/or the
NYS Office of Mental Health.
Plant/capture methods were used to count NYC homeless in the NYC 2005 count
of the homeless.

Researchers:
Eugene Laska, Ph.D., Morris Meisner, Ph.D, Carole Siegel, Ph.D., Joseph
Wanderling, MA

Publication:
Laska EM, Meisner M, Wanderling J., Siegel C. (2003). Estimating
duplication rate and population size based only on birth dates. Statistics in Medicine,
22(21).

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